Klippel-Feil Syndrome Blog

Welcome back fellow earthlings! It has been a while and there may be pockets between posts, some longer than others, but I shall always come back.

Today is not a long one but hopefully just as impactful. Okay imagine being 27, but not the 27 you would typically imagine. Being 27 but feeling 3 times that. Does pain age you? This question I am very sure many humans will understand in the 21st century, especially in 2025. Pain is also insidiously bringing out the most beautiful colours and shades of our wisdom. If you are a 21st century human dealing with any form of pain, I have a question. Who would you be you without all of this pain? How sure are you that you wouldn’t be who you are right now? Did pain change the way you perceived the world around you?

If you had to pick between pain’s, which would you pick for comfort? Strange question right?! Pain roulette in a body that “overreacts” and does not sync with the level of knowledge, intelligence and logic within. So imagine you look in the mirror, you look 27. But nobody sees the carbon dated spine and skeletal system holding your entire being with an unearthly amount of gravity designed just for you. Right so, you are now 27, with a carbon dated spine and skeletal system, but now you have not slept since the bronze age. How do you feel? Is it a possibility that pain is forcing us to evolve?

Is it also a possibility that these humans with rare genetic defects and chronic pain, have become so strategically pain aware that they get looped into a paradox? Being both hyper-present but half vacated. So many paradoxes, pain & guilt. Being handed a genetic defect, much like being handed Hades double edge sword, difference being both sides now point towards you! Seems the human body can withstand the pain of its own cells exploding into a billion suns, while it’s nerves spread paradoxes from the slow burning depths of agony. Each flare falling like dominoes into the next until,…………..BAM! it all collapses into a bending black hole, ricocheting across your own quantum tunnel, leading back to exactly where you started. Only now, the gravity is heavier? Now you know this terrain so very well, but now the map is burned and your perception of the world around you is changing and something!? Something……..is well, missing?

Finding breadcrumbs of yourself every time you travel this terrain, like you are your very own Hansel and Gretel, avoiding the pain witch best you can. What do you do now? Could it be that genetic defects cause a quicker cycle of change? Which could be a rush of force to push the human race to evolve? Maybe pain itself causes a quicker shed of skin, if, you allow it. Many humans are just not ready to talk about pain, and that is okay. We have to go at our own pace, no matter what happens. Maybe that is how we can now walk alongside pain, by wholeheartedly respecting our own boundaries, no matter what? Keep moving forward, challenge yourself, keep reaching, but stay soft, be brave and always, always be patient.

If this blog is a lighthouse, then Metabolic Support UK is the flame at the edge of that horizon. Took so long to find a real ear that understood, but once found, it has lifted some weight straight out of those paradoxes, maybe even left more breadcrumbs towards the rebuilding of self.

If you keep searching for a light, you will find another! It can take years which feel like centuries to find it, and not every light along the way will help in the way you expect, they may disguise and then consume, but all will lead you to where you need to be, and the right lights, Well they will listen, respect your boundaries and most of all never rush your healing. For those that resonate and understand walking this sometimes unmapped terrain, Metabolic Support UK is one of those rare lights. Brighter than most, softly patient, gently present and most of all REAL!

© Crystal-Lily [2025]. All rights reserved.
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This is lived research. Respect it accordingly.

Blog post 11