Klippel-Feil Syndrome Blog
journaling outside the box
Category: Reflections
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These field notes are from the middle of grief. You don’t need to explain yourself here. You can’t just give yourself away like it means nothing. What have you buried deep, to make others feel comfortable? As humans we are quickly moving towards total suppression of self. This means we are holding on to all…
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RARE MUTATION PACT. I document Klippel-Feil Syndrome not as a symptom, but as a signal. I am mapping boundary flares into data. I honour nervous system refusal and question medical norms with tenderness. I respect all paths to relief and only speak from the landscape of my own body. This codex lives for clarity, not…
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People often say “life is unfair” with a tone of resignation like a closing argument in a case already lost. But what if we remove the emotional weight, strip the phrase of its victimhood, and look at it through a clearer lens? Replace “fair” with “equal.” Now we’re not just talking about hardship, we’re talking…
Klippel-Feil Syndrome Blog 